Education & Resources

This page was created to provide families navigating spina bifida or other medical complexities with trusted information, practical resources, and helpful guidance.

**THIS PAGE IS UNDER CONSTRUCTION**

Learn about spina bifida, common associated diagnoses, and potential treatments and surgical interventions your child may need throughout their journey

What is Spina Bifida?

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Spina Bifida Association

A trusted and reliable resource offering extensive information, education, and support for families throughout every stage of their child's journey with spina bifida

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A brief guide to understanding Medicaid, how to apply, and how to determine whether your child may qualify for coverage

What's Medicaid & Do We Qualify?

First Steps Early Intervention Program

Find your state's early intervention program, how to apply, and the therapies and support services offered

A helpful resource for families learning how medical supplies and equipment are obtained and where to turn if you need additional assistance or support

Medical Supplies & Equipment

A practical resource to help parents confidently advocate for their child, including tips for organizing medical records

Parent Advocacy

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